Things continue to go smoothly this week. I continue to feel better and have more energy. Technically, Wednesday the 25th was one month after my transplant. I still can't believe how much my life has changed in one month! It's incredible (my new favorite word!)
This week, I stopped three of the medications I was discharged on. This includes inhaled Tobi. That marks the end of my CF lung routine! It was nice to slowly transition away from the routine, and now it's nice that it's behind me! I still feel like I'm cheating in the mornings when I set the alarm for half an hour before I need to leave! I'm pretty sure I'll get used to it though!
My dose of prednisone was lowered to 20mg this week. This is a good thing. My cheeks are so puffy, particularly when I wake up. I don't really mind, but I do notice the difference. I'm also going to blame the prednisone for my crazy appetite! I think about food all the time. Even when I'm full. I can't wait until my next meal. Or snack. And I can't say no to treats. Particularly ice cream, gelato, and slurpees. And gummies. And dill pickle chips. Luckily, I am not grazing all day, but having regular meals so I can accurately track my blood sugars. My sliding scale was revised yesterday, so hopefully we can get my afternoon prednisone highs down to a reasonable level. Even though I knew my CFRD would get worse after transplant, I didn't anticipate taking ~60 units of insulin a day! It feels like so much compared to before. I understand why it happens and how important it is to manage healthy blood sugars... but I'm still surprised.
I'm happy everyday at the gym when I can increase my weights or my speed on the treadmill. I'm already walking for 30 minutes at 3.0, while talking. This is already a big improvement from before transplant. It's weird to have my legs feel sore before I'm breathing hard. I'm not used to this!
The other day my husband and I walked for an hour and 20 minutes. We went non-stop, just checking out the beautiful university campus. Again, it was more of a mental challenge than physical. Previously with my O2, I needed to know that I was going to go from Point A to Point B with a rest stop here and there. There had to be a purpose to the walk, otherwise it wasn't worth the energy. It really challenged me to wander and not know where I was headed or have a task associated with the trip. Once I got over that, I really enjoyed the walk and just being free!
This week I also got my home spirometer. After a brief training session, this little toy is now a part of my daily monitoring routine. Every morning I weigh myself, check my blood pressure and pulse, check my temperature, and do my PFTs. I still need some practice because my PFTs at home are all over the place. I expect to see a pattern soon.
I saw my post-transplant chest x-ray for the first time. Wow! Those are some good-looking lungs, if I say so myself! The difference between the pre- and post- is incredible! I love it!
I'm looking forward to a fun weekend with friends and family!
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