Clinic

It seems like I'm spending a lot of time there! My visit yesterday went well. I'm almost two weeks out of the hospital... but it feels like much longer. That's what freedom does! My pft's are about the same, and my weight has gone up. Again.

I am now officially back to the weight I was when I first came to the Adult CF Clinic at 18. The weight that is listed on my driver's license. The ideal BMI. I chart my FVC, FEV1 and weight at home to keep track. Over the last five years, my lung function has zig-zagged it's way down and my weight has steadily climbed it's way back up. My weight bottomed out in 2007 after our big Europe trip, and have have slowly put that 10 kg back on.

I feel like my weight is the one thing about my CF that I can actually control. I had always struggled with it as a kid, but as an adult something clicked and I could maintain a healthy weight. I still have to work at it, but it's nice to have one less thing to worry about. I can force feed myself, no problem. I am so lucky that my husband is an excellent cook. I admit I don't cook at all. But I will eat and give compliments to the cook!

Another thing that has made a difference is getting my CFRD under control. I have been diabetic for maybe four years, and started using insulin three years ago. I feel like I have that figured out. My A1C is normal and I don't have too many highs or lows. Of course, transplant is going to screw that all up, but that's no surprise.

I'm looking forward to eating my share of holiday baking!