I finally got reliable Internet, so I'm back. I had a wonderful long weekend. This is the FIRST long weekend of the ENTIRE year that I wasn't in hospital. It felt so good to be FREE! It was just my husband and I hanging out for the weekend, no visitors. We woke up early every morning and went for a walk. The first morning my husband had to convince me to go. Once I got moving, we walked about 3km to check out the Farmer's Market. I had no idea I could walk so far. The next morning we set out for another early walk and we walked over 5km! I was so proud of myself. It's been a long time!
It is such a mental shift to be able to walk! I still recognize myself using the pre-transplant self-talk that I am trying to re-write. I tell myself I can't walk that far. I look for benches and chances to rest along the way. I try to plan how much time I'll be out, although there are no tanks to run out on me. Lucky for me, my husband sees right through it and calls me on it every time. He asks me if I'm out of breath, and the answer is always NO!
It's so strange to walk or exercise until my muscles get sore. This isn't a sensation that I'm used to. I used to walk until I was SOB and was forced to rest and my entire body was exhausted. What a change! I have been pushing myself in the gym too and making progress. My feet and calves have been sore, but it's a good feeling though.
Last week my PFTs reached an all-time, life-long high... 101% FEV1 and FVC. I was beaming for the rest of the day!
Results from the bronch have come in, and there is still Pseudomonas in my airways. Not a surprise by a long shot since I had it pre-transplant. We are going to treat it similar to an exacerbation and try to get rid of it once and for all. I hope it works!
Just saw that the CF sisters made it to the Top 10 on America's Got Talent. Great CF awareness. Good luck to them!
101!! You over-achiever you! That's awesome.
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