Tomorrow I'm heading back to clinic for some resolution I hope! I am still disappointed with my last visit. Like I've said before, I think my team is amazing and very caring, but I felt like I wasn't heard. I went in because I saw a change- a big decrease in my quality of life because of my shortness of breath- and I feel like it was treated as my inability to cope. I don't think it helps when my sats at rest look normal. They always look normal which is very deceptive. But at this point it's not about the numbers. I don't even do PFTs if I'm not feeling well. The information from the PFTs doesn't help treat me anymore and it's not worth the effort on my part. Anyways, I'm looking forward to a better visit with more action tomorrow!
Despite the snowy and windy winter weather, I have had a better week so far. A couple of friends have come over to visit, which has been fun. I'm at the point where it's much easier for people to come to me so I don't have to leave the house. Plus I don't have to change out of my sweats that way! My rule is I can wear sweats at home but not out (walking the dog and hospital stays are the exceptions). It sound silly but it makes me feel more normal.
I fought off a cold last week. I'm so glad it went away without causing too many problems. I just took it easy and it disappeared. It's funny, 'taking it easy' compared to my normal daily routine now look exactly the same. Oh well!
No comments:
Post a Comment