Great news- James got his lungs! It's so exciting to be part of the online CF community and hear about others getting transplants and starting a new life. I know I've benefited from the support of others going through the same stages, feelings and issues that I am. It means a lot to know that I'm not alone and that my current life isn't so strange!
I have been expanding my CF network at home too. Facebook has been a great tool to chat with others that I may only see once a year at clinic or at a fundraiser. Even though I'm a regular at clinic now, it's not a great place to chat and get to know people. Facebook works much better! There's even a couple of CFers that are going through the tx process too, but I am ahead of them all at this point. There are also CFers that are post-transplant that I am learning so much from. I know I'm lucky to have their guidance and encouragement.
I also have two childhood CFer friends that I don't see on a regular basis, but catch up with every now and then. I have been in touch with them both lately. Can't say the news was good though. One of them is also on the road to transplant after a rapid decline. The other has been diagnosed with cancer. I know both of them will do well and be healthy again, but it makes me mad. Isn't CF enough?!?
No comments:
Post a Comment