I don't know why the blue glow of my IV pump at the hospital late at night gets me thinking. It's hard enough to sleep at the hospital, but when I turn out the lights my mind fills up with thoughts about my CF life. Too much time for reflection I guess.
These couple of days in hospital have been tough. I am more tired than ever before, and coughing more than ever before. I don't even feel like myself until about 4pm when I get a bit of energy. I know things will improve soon when the antibiotics kick in. I have been lucky to be visited and entertained by friends and family, who come regularly with meals and stories to tell me.
There is no doubt that my visits here are getting closer together. In the last year: December, March (home IVs), May, August (home IVs), October, November. I have accepted that I will be here a lot as I wait for transplant. I am still thinking positively, but it's a reality that I understand. It's the nature of CF.
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