Monday, March 22

Here We Go Again

Over the last two weeks I have experienced a slow progression that's landed me back in the hospital. I have been very SOB and I've been having chest/lung pain. That's unusual for me, so I've been pretty concerned. We haven't figured it all out yet, but we've been crossing off possible causes. High Co2? Nope, my blood gas results are similar to last time. Collapsed lobe? Nope, my xray looks about the same. Heart problems? Nope, things are good in that department too. I am on IV Tobra and Cefepime and I hope it'll kick in soon.

In other hospital news, I was moved from my private room to a semi-private this afternoon. Ugh. Of course, my roommate is all kinds of crazy and I have NO sympathy for people who wreck their lungs by smoking. I'll save you the rant, but the smell of the cigarette smoke hanging in the air is an issue. I have no luck with roommates. Or with sharing bathrooms with five other people.

Enough about me already.

I am thrilled to hear all of the recent news in the CF blog community... CFers getting new lungs, CFers having dry runs that provide a new perspective and energy to continue waiting, CFers responding to anti-rejection meds, and CFers being listed at excellent tx centres with short wait lists. Every story is exciting and encouraging. I love all of the good news!

I also heard some good news from my exercise group at my tx centre. I heard that two of them have their new lungs! I am thrilled for them. Things are looking up!

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